wAIHA Treatment Landscape Update
The treatment landscape for wAIHA continues to evolve. The FDA has recently approved nipocalimab-aahu for warm autoimmune hemolytic anemia (wAIHA). FWGBD has updated its AIHA…
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New Guidance for Caring for Pregnant Individuals with Factor VII and Factor XI Deficiency
Caring for women with ultra-rare bleeding disorders during pregnancy and childbirth presents unique challenges for both patients and healthcare providers. Because these conditions are uncommon…
New Publication: Recognizing Bleeding Disorders in Adolescents with Heavy Menstrual Bleeding
A new review published in Research and Practice in Thrombosis and Haemostasis highlights the need for earlier recognition of heavy menstrual bleeding, evaluation for iron…
Free Webinar: Hemophilia A Genetics & Pregnancy
On behalf of our friends at the Hemophilia A Research Program (HARP) and Dr. Jill Johnsen, we encourage you to attend a free webinar on…
Now Accepting Applications for FWGBD’s 2026 Research Awards
FWGBD is pleased to announce the offering of its 2026 research awards. Applications are due September 25, 2026.Additional information, applications, and instructions can be found on…
ASH Clinical News Feature with FWGBD Co-Founder, Dr. Roshni Kulkarni
It is with great pleasure that we share Dr. Roshni Kulkarni's recent feature in the latest ASH Clinical News publication, Missed Signals. This spotlight recognizes…
New Resource! PNH Tear-Off Sheets
FWGBD is pleased to announce three new resources for providers and patients navigating Paroxysmal Nocturnal Hemoglobinuria (PNH). In conjunction with the Shared-Decision Making Toolkit for Medical…
FWGBD Co-Founder, Dr. Roshni Kulkarni, Receives Prestigious WFH President’s Award
We are proud to share that FWGBD co-founder, Dr. Roshni Kulkarni, has been honored with the prestigious World Federation of Hemophilia (WFH) President’s Award at…
Join us in Recognizing World Hemophilia Day 2026
The World Hemophilia Day theme, “Diagnosis: First Step to Care,” highlights the essential role of early and accurate identification in guiding appropriate management. FWGBD is committed to…
FWGBD Board Member, Dr. Ravi Sarode, Named 2026 Francis S. Morrison, M.D., Memorial Lecturer
The Foundation for Women & Girls with Blood Disorders (FWGBD) is proud to share that FWGBD Board Member, Dr. Ravi Sarode, has been selected as…
FWGBD Mourns the Passing of Dr. Lynn Malec
**2/19/26 Update**Family and friends of Dr. Lynn Malec have created the following page to support her husband and children through this difficult time. Please consider…
Congress Passes Government Funding Bill with Big Wins for the SCD Community
Positive news for the SCD Community. Please read below for updates from our friends at the Sickle Cell Disease Association of America (SCDAA). Link to…
AIHA Resource Page – Updates coming soon!
We’re currently working on updates to FWGBD’s Autoimmune Hemolytic Anemia (AIHA) Resource Center. Since the original release of this page, significant new research and clinical…
MAC Must-Read Articles of 2025
FWGBD's Medical Advisory Committee (MAC) members are researchers and educators at the top of their respective fields. For 2025, committee members prepared and selected a curated resource…
January 2026 New MAC Members
The Foundation for Women & Girls with Blood Disorders (FWGBD) is pleased to welcome Michelle Sholzberg, MDCM, MSc, FRCPC, and Kinga Malinowski, MD, MSc, FRCSC,…
