The Foundation for Women & Girls with Blood Disorders seeks to ensure that all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage. We achieve this through: 

  • Raising awareness and educating key healthcare providers for each life stage, including hematologists, pediatricians, OB/GYNs, adolescent medicine, family practice, emergency medicine, geriatricians, nurses, dentists, dental hygienists, social workers, and genetic counselors
  • Translating/disseminating provider information and research
  • Fostering collaboration and generating knowledge among core disciplines
  • Nurturing future healthcare leaders

This past year alone, the period from December 2020 through December 2021, marked a number of achievements. During this program year, the Foundation: 

  • Helped drive the conversation regarding hemsotatic disorders in women and girls through our third (3rd) Colloquium on Hemosatatic Disorders in women and girls held virtually preceding the HTRS meeting 
  • Conducted Workshops and Presentations at 2 major medical / interdisciplinary meetings 
  • Shared our resources virtually at four (4) national medical meetings
  • Launched our new Case Conversations Journal Club Series
  • Developed and webcast three (3) live Webinars; all archived in the Education section of fwgbd.org
  • Promoted research excellence by granting three (3) research fellowship awards - one (1) Promoting XXcellence in Women’s Health: Optimal Management of Women and Girls with Blood Disorders ($15,000) and two (2) in Promoting XXcellence in Women’s Health: Optimal Management of Women and Girls with Bleeding Disorders ($35,000)
  • Scaled up and expanded our WGBD Learning Action Network (LAN)* membership to include 246 members who represent 81 institutions located in 35 states within the US, and one (1) center in Canada and one (1) center in Utrecht, the Netherlands
  • Increased memebership of our WGSCD Learning Action Network (LAN)* to include 91 members from 44 centers in 25 states
  • Stood for high-quality reproductive healthcare for women and girls with SCD alongside a broad group of stakeholders
  • Convened the seventh WGBD LAN annual meeting/workshop of 162 members virtually for education and the exchange of best practices; to hone the model of a clinic or services of excellence for women and girls with blood disorders; and to advance collective LAN research agenda
  • Convened the fourth WGSCD LAN annual meeting/workshop of 65 members virtually for education and the exchange of best practices; to hone the model of services of excellence for women and girls with SCD; and to advance collective LAN research agenda
  • Shared FWGBD’s work and strategies with constituents and chapters of NHF
  • Continued to add to our new Ask-the-Expert resource library to increase awareness and enhance knowledge
  • Continued to update our Website, fwgbd.org, with the development of a new Resource pages for both patients and their providers, as well as the addition of several News Stories and resources offered through our Library and Patient Resource pages

If you have ever attended one of our Webinars or education symposia, you already know the quality and expertise that our educational sessions deliver. Don’t miss an opportunity to enhance your knowledge about women's blood disorders - join our email list today