The Foundation for Women & Girls with Blood Disorders seeks to ensure that all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage. We achieve this through: 

  • Educating key healthcare providers for each life stage, including hematologists, pediatricians, family practice, emergency medicine, OB/GYN, geriatricians, nurses, dentists, dental hygienists, social workers, and genetic counselors
  • Translating/disseminating provider information and research

This past year alone, the period from December 2018 through December 2019, marked a number of achievements. During this program year, the Foundation: 

  • Conducted Workshops and Presentations at 4 major medical or interdisciplinary meetings
  • Developed and webcast 4 live Webinars; all archived in the Education section of
  • Granted 2 research awards: one (1) in Promoting XXcellence in Women’s Health: Optimal Management of Women and Girls with Blood Disorders ($15,000) and two (2) in Promoting XXcellence in Women’s Health: Optimal Management of Women and Girls with Blood Disorders ($35,000/each) 
  • Continued to enhance and expand our WGBD Clinic Directory to include 124 HTCs
  • Continued to enhance our online WGSCD Directory (36 organizations in 18 states are currently in our WGSCD Directory)
  • Expanded our WGBD Learning Action Network (LAN) membership to include 190 members who represent 61 institutions located in 28 states, as well as one (1) institution in Canada and one (1) in Utrecht, Netherlands 
  • Convened the fifth FWGBD in-person meeting of WGBD LAN members in Kansas City, MO, for education and the exchange of best practices, to hone the model of a clinic or services of excellence for women and girls with blood disorders, and to advance collective LAN research agenda
  • Convened our second WGSCD LAN in-person meeting in Kansas City, MO 
  • Presented FWGBD work and strategies to 75 patients/providers at the second Being Visible: Women with Hemophilia Conference in Michigan
  • In an effort to build even more awareness, we published original stories to share the work being done in women's blood disorders and highlighted the providers behind this work to inspire action
  • Continued upgrading our Website,, including a revision to the Library and Resource Section

If you have ever attended one of our Webinars or education symposia, you already know the quality and expertise our educational sessions deliver. Don’t miss an opportunity to enhance your knowledge about women's blood disorders - join our email list today