The Foundation for Women & Girls with Blood Disorders seeks to ensure that all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage. We achieve this through: 

  • Educating key healthcare providers for each life stage, including hematologists, pediatricians, OB/GYNs, adolescent medicine, family practice, emergency medicine, geriatricians, nurses, dentists, dental hygienists, social workers, and genetic counselors
  • Translating/disseminating provider information and research

This past year alone, the period from December 2019 through December 2020, marked a number of achievements. During this program year, the Foundation: 

  • Hosted our first biennial national conference for 253 healthcare professionals held virtually over two days featuring 33 internationally renowned physicians/researchers
  • Conducted Workshops and Presentations at 2 major medical or interdisciplinary meetings (two additional meetings were postponed until 2021)
  • Hosted a virtual booth at 4 medical meetings
  • Developed and webcast 2 live Webinars; all archived in the Education section of
  • Granted 1 research fellowship award in Promoting XXcellence in Women’s Health: Optimal Management of Women and Girls with Bleeding Disorders ($35,000); three additional awards will be awarded at the start of 2021 – one (1) Promoting XXcellence in Women’s Health: Optimal Management of Women and Girls with Blood Disorders ($15,000) and two (2) in Promoting XXcellence in Women’s Health: Optimal Management of Women and Girls with Bleeding Disorders ($35,000)
  • Expanded the WGBD Learning Action Network (LAN)* membership to include 200 members who represent 71 institutions located in 30 states within the US, and one (1) center in Canada and one (1) center in Utrecht, the Netherlands
  • Convened the sixth FWGBD annual meeting/workshop of 88 WGBD LAN members virtually for education and the exchange of best practices; to hone the model of a clinic or services of excellence for women and girls with blood disorders; and to advance collective LAN research agenda
  • Presented FWGBD’s work and strategies to female patients at the third Being Visible: Women with Hemophilia conference held virtually from Detroit, MI
  • Continued to add to our new Ask-the-Expert resource library to increase awareness and enhance knowledge
  • Continued to update our Website,, with the development of a new ITP Resource page for both patients and their providers, as well as the addition of several News Stories and resources offered through our Library and Patient Resource pages

If you have ever attended one of our Webinars or education symposia, you already know the quality and expertise that our educational sessions deliver. Don’t miss an opportunity to enhance your knowledge about women's blood disorders - join our email list today