Provider Handouts
The Foundation for Women & Girls with Blood Disorders seeks to ensure that all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.
The Foundation works to achieve this goal through:
Raising awareness and educating the key healthcare practitioners for each particular life stage, including but not limited to, family practice providers, pediatricians, internal medicine physicians, obstetricians, gynecologists, hematologists/oncologists, geriatricians, nurses, and social workers
Translating and disseminating provider information and research
Below are resources available for the healthcare team to utilize with patients.
In collaboration with Hemophilia of Georgia, FWGBD worked with members from the Jeanne M. Lusher Center for Hemostasis and Thrombosis, the WGBD™ LAN Nursing Subcommittee, and members of the FWGBD Medical Advisory Committee, to develop the following resources for providers to share with their patients to address heavy menstrual bleeding. These pages are offered in both Spanish and English to provide expanded reach to both your patients and their families. All documents have been extensively reviewed to provide the most up-to-date information in an easy-to-absorb format.
About Your Period
This resource serves as a primer for the menstrual cycle. It provides an overview of what happens, what to expect, and words to know.
About Your Period – English
Sobre tu Periodo (About Your Period – Spanish version coming soon)
Period Frequently Asked Questions (FAQs)
Formerly a part of the About Your Period resource, this FAQ sheet answers some commonly asked questions about your period.
Period FAQ – English
Periodo Preguntas Frecuentes (Period Frequently Asked Questions – Spanish)
Heavy Menstrual Bleeding
A further description of heavy menstrual bleeding. This reiterates the signs and symptoms, shares treatment options, and advice for navigating school.
Heavy Menstrual Bleeding – English
Sangrado Menstrual Abundante (Heavy Menstrual Bleeding – Spanish)
Iron Deficiency Anemia
This common condition, especially among those who menstruate – and even more for those who suffer from heavy menstrual bleeding, introduces the condition, symptoms, diagnosis process, and treatment options.
Iron Deficiency Anemia – English
Anemia por Deficiencia de Hierro (Iron Deficiency – Spanish)
Menstrual Product Options
There is a great variety of options to absorb menstrual bleeding. This resource provides an overview of these options, what to expect when using the items, and how to maintain personal hygiene when using each option.
Menstrual Product Options – English
Opciones de Productos Menstruales (Menstrual Product Options – Spanish)
Thank you to the Hemophilia of Georgia for providing funding support for this project.
Thank you to the team at the Jeanne M. Lusher Center for Hemostasis and Thrombosis for their assistance in the development of content.
Sickle Cell Disease and Pregnancy
Women with sickle cell disease are at greater risk for developing health problems during pregnancy than women without SCD. In collaboration with the National Center on Birth Defects and Developmental Disabilities with the Centers for Disease Control and Prevention, the American Society of Hematology, and the Sickle Cell Reproductive Health Education Directive, FWGBD developed the following fact sheets on preconception, prenatal, and postpartum care for women with sickle cell disease (SCD).
- Women with Sickle Cell Disease and Preconception Care
[Click here to download/Available in Spanish and English] - Women with Sickle Cell Disease and Prenatal Care
[Click here to download/Available in Spanish and English] - Women with Sickle Cell Disease and Postpartum Care
[Click here to download/Available in Spanish and English]
Important Conversations: A Shared-Decision Making Toolkit for Medical Professionals and People Living with Paroxysmal Nocturnal Hemoglobinuria (PNH)
This toolkit is intended to support people living with Paroxysmal Nocturnal Hemoglobinuria (PNH) through their journey after receiving a diagnosis, foster better communication with healthcare providers, and provide an understanding of PNH and its impact on quality of life. Improved awareness of PNH and the barriers to care will help improve access to the treatments and medicines that people need – radically improving the trajectory of people living with the disease. This work was made possible through a dedicated group of people impacted by PNH, patient advocates, and medical professionals who served on the PNH Shared Decision-Making Steering Committee.