New Guidance for Caring for Pregnant Individuals with Factor VII and Factor XI Deficiency

Caring for women with ultra-rare bleeding disorders during pregnancy and childbirth presents unique challenges for both patients and healthcare providers. Because these conditions are uncommon and bleeding risk can vary significantly from person to person, individualized care and close coordination among hematology, obstetrics, and other specialists are essential.

Recognizing the need for practical guidance, the Clinical Care Subcommittee of the WGBD^® Learning Action Network (LAN) formed a multidisciplinary workgroup to develop recommendations for clinicians caring for pregnant individuals with ultra-rare bleeding disorders. The first resources in this series focus on Factor VII deficiency and Factor XI deficiency. The recommendations guide pregnancy and delivery planning, emphasizing the importance of considering an individual’s bleeding history and planned hemostatic management when assessing bleeding risk.

Access below or visit FWGBD’s Guidelines, Screening Tools, & Recommendations Page

WGBD^® LAN Recommendations for the Interdisciplinary / Multidisciplinary Care of Pregnancy and the Postpartum Period in Individuals with Factor VII Deficiency

WGBD^® LAN Recommendations for the Multidisciplinary Management of Factor XI Deficiency During Pregnancy and the Postpartum Period

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