Connective Tissue Disorders and Ehlers-Danlos Syndrome

This is a recorded version of the webinar Connective Tissue Disorders and Ehlers-Danlos Syndrome. This program was presented by Dr. Sarah O’Brien and Dr. Pamela Trapane and was moderated by Kimberly Roque.

Webinar Launch Date: 11/15/19
Estimated Time to complete: 1 hour
Format: Archived Webinar
Target Audience: Primary Care Physicians, Specialty Physicians (Ob/Gyn, Oncology, Hematology), Physician Assistants, Advanced Nurse Practitioners, Registered Nurses, Licensed Practical Nurses, Registered Nurses in Specialty Areas (Ob/Gyn, Oncology, Hematology), Physical Therapists

Program Description: 

This state-of-the-science Webinar will explore the care of women and girls with connective tissue disorders, including a special focus on Ehlers-Danlos Syndrome. The faculty will address specific issues and needs that individuals with connective tissue disorders may have; differentiate between the various types of connective tissue disorders; discuss comorbidities between hypermobility and bleeding disorders; describe the treatment strategies that are recommended for symptom management, and describe the importance of collaboration between disciplines for effective management and treatment.

The relationship between hypermobility and bleeding has long been established. Even so, there’s still much that specialists in each area can learn from one another. There is a lack of knowledge among providers particularly regarding Ehlers-Danlos Syndrome; many hematologists see patients with bleeding symptoms but have no bleeding disorder even though they have significant joint mobility. Women with hypermobility are more resistant to standard treatment than those without, and greater knowledge on the part of the provider can help improve evaluation, treatment, and outcomes. 

Learning Objectives:

After completing this educational activity, participants should be able to:

• Describe the medical complications that individuals with connective tissue disorders may have
• Differentiate between the various types of connective tissue disorders
• Discuss comorbidities between hypermobility and bleeding disorders
• Identify the relationship between patients with hypermobility and bleeding, and how they may be more resistant to standard treatment
• Discuss recommended strategies for the optimal management and treatment of the clinical complications that affect female patients with connective tissue disorders may have, including care related to heavy bleeding
• Discuss ways in which collaboration between disciplines augments management and treatment of patients with connective tissue disorders

Faculty:

Pamela L. Trapane, MD
Professor, Department of Pediatrics
Chief, Pediatric Genetics
University of Florida Health 
Jacksonville, FL

Sarah H. O’Brien, MD, MSc
Associate Professor, Hematology/Oncology 
Director of Experimental Therapeutics
Section of Hematology/Oncology/BMT
Nationwide Children’s Hospital
Columbus, OH

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