CDC Public Health Webinar Series on Blood Disorders: What Patients are Saying about Hemophilia Treatment Center Care

The Division of Blood Disorders is proud to offer this webinar series, providing evidence-based information on new research, emerging issues of interest in blood disorders, as well as innovative approaches to collaboration.

What Patients are Saying about Hemophilia Treatment Center Care, Teams, and Services: Third National Patient Satisfaction Survey
December 1, 2022 – 2:00–3:00 PM ET

Presenter 
Kaveh Shabtaie, MPH
Regional Administrator, Northern States Region
Great Lakes Hemophilia Foundation 

Presenter 
Susan Lattimore, RN, GCPH
Regional Director, 
Mountain States Region
Oregon Health & Science University 

Moderator
Vanessa R. Byams, DrPH, MPH
Lead Health Scientist, Division of Blood Disorders
National Center on Birth Defects and Developmental Disabilities
U.S. Centers for Disease Control & Prevention

Federally supported U.S. hemophilia treatment centers (HTCs) deliver integrated, specialized care and services for individuals and families living with bleeding disorders. Interactions with healthcare providers and services can influence health outcomes and quality of care. Patient satisfaction with healthcare team members and services are key quality metrics, as indicated by the U.S. Health Resources and Services Administration, associated with patient engagement, treatment adherence, and improved outcomes. 

In 2021, the United States Hemophilia Treatment Center Network conducted the third U.S. HTC Patient Satisfaction Survey to gather direct patient and family input on satisfaction with their HTC healthcare team and services. The network received a robust response to the survey. 

In this webinar, Mr. Shabtaie and Ms. Lattimore will describe key results from the third survey, compare results from the previous two surveys, and highlight how satisfaction differs across patient populations. 

Learning Objectives:

1. State the purpose and value of the U.S. HTC Patient Satisfaction Survey.
2. List two key findings from the third U.S. HTC Patient Satisfaction Survey.
3. Describe how stakeholders can use the U.S. HTC Patient Satisfaction Survey in a changing healthcare landscape. 

This webinar is free and open to healthcare providers, pharmacists, and public health researchers who desire more information about hemophilia. Advance registration is required, and the number of attendees is limited. 

Please preregister here: https://bit.ly/3Wccp5s

For more information please contact Cynthia Sayers: cay1@cdc.gov

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