These online resources were supported by an educational donation by Dova Pharmaceuticals.

Treating, Managing, & Supporting Patients for Optimal Well-Being

Immune thrombocytopenia (ITP) is a debilitating autoimmune disorder characterized by increased platelet destruction and reduction in blood platelets, resulting in an increased incidence of bleeding. Using the 2019 American Society of Hematology (ASH) evidence-based guidelines for treatment and management of ITP as its basis, FWGBD has curated content that can help providers navigate optimal treatment and management recommendations for patients with ITP; bolster provider knowledge to support patients with ITP in their treatment journey; and provide multidisciplinary insight in patient care.


Provider Resources for Optimal Patient Treatment and Management

FWGBD has collected the best-in-class resources to guide providers in their diagnosis, treatment, and management of patients with ITP. The resources, gathered with input from clinical experts, is intended to support providers in developing their knowledge base related to this often difficult to manage disease.

Recent research conducted by the American Society of Hematology (ASH) indicates that providers, especially those outside hematology, may have knowledge and practice gaps with regard to appropriate diagnosis of ITP, given there is no specific clinical test to confirm a suspected diagnosis.  In fact, research suggests that one in 7 patients suspected of having primary ITP was misdiagnosed at some point during their disease course; 56.1% had grade 2 bleeding (Arnold, 2017).  Additionally, because the course of the disorder varies dramatically across pediatric and adult populations and may be chronic or idiopathic, the treatment protocols may also vary dramatically. 

ASH recently revised its 2011 evidence-based guidelines for treatment and management of ITP. The 2019 guidelines focus on determining the optimal treatment protocol and second-line agents where necessary, in an effort to avoid treatments that have little evidence of success and may have detrimental side effects that outweigh possible benefits. Realizing that ITP can carry a significant patient burden, the guidelines were developed with a patient-focused lens to help evaluate the impact of various disease management options on quality of life.


Provider Resources to Support Optimal Patient Care

For many patients, current treatments, particularly corticosteroids, are associated with multiple, even severe, side effects that may lead to patients stopping or reducing therapy, despite the overall benefits. Successful treatment of ITP involves open communication and support between providers and patients in order to help patients navigate the burden of managing their disease and enhance their quality of life. The following articles drawn from leading academic journals offer insight from other providers’ research to help inform care of your own patients:


Resources for Patient Care and Support

Patients need easy-to-navigate resources to help them get started in understanding this complicated disease. These curated resources are a useful place to help your patients along their ITP management journey.


Ask the Experts: Your ITP Questions Answered

Ask-the-Experts is a resource for healthcare providers that enables medical professionals to submit a question to the Foundation's Board and Medical Advisory Committee members to receive their opinion on treatment and management of medical conditions. These researchers and educators at the top of their respective fields offer their perspectives on managing ITP in complex cases.

     

Note: The cards above are included as samples; videos of experts being interviewed about ITP will be used.

Contact and Connect:

If you are a healthcare provider and have a question for one of our experts, click here to SUBMIT YOUR QUESTION. All Ask-the-Expert users must first read and agree to the conditions of Terms of Service.  

*Please note that our experts are unable to provide advice for specific patients and are only available to answer questions from their colleagues. 


COVID-19 Resources for Providers Treating Patients with ITP

These COVID-19-related resources have been gathered in an effort to support healthcare providers and are not intended to provide medical advice or to substitute for the judgment of healthcare professionals in the care of their patients.