Now published! State of the Science Working Group research recommendations for inherited bleeding disorders
FWGBD staff and friends have had the opportunity to participate in the National Hemophilia Foundation’s (NHF) State of the Science (SOS) Research work groups. Across six different work groups with various priorities to shape the future of research for individuals with inherited bleeding disorders, each Working Group has published papers in Expert Review of Hematology, with recommendations to advance the state of care.
Founding Board Member, Dr. Barbara Konkle, participated in Working Group 2: Research priorities for mucocutaneous bleeding disorders. Their may be accessed here: https://www.tandfonline.com/doi/full/10.1080/17474086.2023.2171983
Founding Board Member, Dr. Roshni Kulkarni, participated in Working Group 4: Research to advance the health of women and girls and people with inherited bleeding disorders with the potential to menstruate. Their article may be accessed here: https://www.tandfonline.com/doi/full/10.1080/17474086.2023.2183836
Kerry Funkhouser, EdD, FWGBD Executive Director, participated in Working Group 6: Facilitating research through infrastructure, workforce, resources and funding. Their article may be accessed here: https://www.tandfonline.com/doi/full/10.1080/17474086.2023.2181781