News

New Resource! PNH Tear-Off Sheets

May 21, 2026

FWGBD is pleased to announce three new resources for providers and patients navigating Paroxysmal Nocturnal Hemoglobinuria (PNH). In conjunction with the Shared-Decision Making Toolkit for Medical Professionals and People Living with Paroxysmal Nocturnal Hemoglobinuria (PNH), we developed three new resources (each available in English and Spanish) as supplemental tools.

Download the documents below and CLICK HERE to request a pack be sent to your clinic – free of charge.

Managing Life with PNH – English Download
Manejar la vida por HPN – Spanish Download
Living with PNH: Managing Fatigue and Energy Levels – English Download
Vivir con HPN: Manejar la Fatiga y los Niveles de Energía – Spanish Download
Planning for Pregnancy with PNH – English Download
Planificar el Embarazo con HPN – Spanish Download