Resources

Filter by:

Provider Attitudes, Preferences, and Practices Regarding Sexual and Reproductive Health for Adolescents and Young Adults With Sickle Cell Disease

Leroy-Melamed M, Jacob S, Shew ML, Kazmerski TM
Sickle Cell Disease

Knowledge gaps in reproductive and sexual health in girls and women with sickle cell disease

Pecker LH, Sharma D, Nero A, Paidas MJ, Ware RE, James AH, and Smith-Whitley K
LAN Developed Pregnancy and Postpartum Sickle Cell Disease Workforce Development

Inherited Platelet Disorders: An Updated Overview

Palma-Barqueros V, Revilla N, Sánchez A, Zamora Cánovas A, Rodriguez-Alén A, Marín-Quílez A, González-Porras JR, Vicente V, Lozano ML, Bastida JM, Rivera J.

Enhancing therapeutic efficacy of in vivo platelet-targeted gene therapy in hemophilia A mice

Wang X, Fu RY, Li C, Chen CY, Firrman J, Konkle BA, Zhang J, Li L, Xiao W, Poncz M, Miao CH
Acquired Hemophilia

Core data set on safety, efficacy, and durability of hemophilia gene therapy for a global registry: Communication from the SSC of the ISTH

Konkle B, Pierce G, Coffin D, Naccache M, Clark RC, George L, Iorio A, O'Mahony B, Pipe S, Skinner M, Watson C, Peyvandi F, Mahlangu J
Acquired Hemophilia

Patient-relevant health outcomes for hemophilia care: Development of an international standard outcomes set

van Balen EC, O'Mahony B, Cnossen MH, Dolan G, Blanchette VS, Fischer K, Gue D, O'Hara J, Iorio A, Jackson S, Konkle BA, Nugent DJ, Coffin D, Skinner MW, Smit C, Srivastava A, van Eenennaam F, van der Bom JG, Gouw SC.
Acquired Hemophilia