Agenda

Mezzanine Level Foyer, 2^nd Floor

Mezzanine Level Foyer, 2^nd Floor

Room: Georgian
Conference Co-Chairs: Rachel Rosovsky, MD, MPH and Patricia Huguelet, MD

Plenary I: Navigating Thrombotic Risk Across the Lifespan
Room: Georgian
Thrombotic risk in women evolves across the lifespan and requires careful balancing of bleeding and clotting risk. Using an interactive clinical case, this session will follow a patient from childhood through menopause, examining how anticoagulation decision-making evolves across key life stages.

Faculty:
– Rachel Rosovsky, MD, MPH (Moderator)
– Jennifer Davila, MD
– Bethany Samuelson Bannow, MD, MCR
– Ann Bruno, MD, MSci

Workshop A: Advanced Practice Care Models: APP-Led Iron Deficiency Clinic
– Meredith Gustafson, MSN, CNP
– Room: Hancock

Workshop B: Sickle Cell Disease & Thrombosis
– Cheryl Mensah, MD
– Room: Berkley

Workshop C: Polyendocrine Metabolic Ovarian Syndrome (PMOS)
– Melanie Cree, MD, PhD
– Room: Clarendon

Workshop D: Cultural Conversations Regarding Menstruation and Heavy Menstrual Bleeding
– Amanda French, MD and Lynda Martinez, RN, MSN, CPON, CNE
– Room: Georgian

Jane Austen’s Period Drama | Film Premiere
Co-Writer and Co-Director, Steve Pinder
Room: Georgian

Moderator: Kerry Bozza Funkhouser, EdD, FWGBD Executive Director

Knowledge Center/Exhibit Hall | Statler & Mezzanine Level Lobby, 2^nd Floor

(Knowledge Center/Exhibit Hall)
Mezzanine Level Foyer & Statler, 2^nd Floor

Breakfast Satellite Symposium – Industry Sponsor: SANOFI
ITP Clinical Case Review & Real-World Experiences
Faculty: Michael Tarantino, MD
The Square, 1^st Floor
This session is NOT accredited for continuing education credit

Knowledge Center/Exhibit Hall
Mezzanine Level Foyer & Statler, 2^nd Floor

Morning Welcome
Room: Georgian
Conference Co-Chair: Patricia Huguelet, MD

Plenary II: Navigating Care for Women & Girls with Blood Disorders
Room: Georgian
As the field of blood disorders evolves, so must the policies and systems that shape access to care. This plenary will explore how health policy, regulatory frameworks, and reimbursement structures can either advance or hinder equity and equality for women and girls with blood disorders.

Grounded in both clinical experience and public health principles, this plenary will examine how coverage decisions, prior authorization requirements, and care delivery models impact access, quality of care, and health outcomes. It will challenge attendees to think beyond current systems and consider how policy can be leveraged as a powerful tool to drive equity, improve outcomes, and ensure all women and girls receive the care they need and deserve.

Moderator: Patricia Huguelet, MD
Faculty: Andrew O’Brien, MD

Please visit the Knowledge Center/Exhibit Hall (Mezzanine Level Foyer & Statler, 2^nd Floor) for refreshments and networking, while also collecting resources to build period packs for local adolescent clinics.

Industry Sponsor: CSL Behring

The Lynn Malec, MD, Memorial Lecture
Charting the Course: Interdisciplinary Surgical Planning for Women and Girls with Blood Disorders
Room: Georgian
This session will highlight a multidisciplinary approach to perioperative care for patients with bleeding disorders, with a focus on gynecologic procedures. Faculty will review preoperative risk assessment and diagnostic considerations, including common conditions such as submucosal fibroids and related interventions. The session will also address intraoperative hemostatic management and surgical considerations, as well as postoperative monitoring, bleeding management, and recovery planning. Discussion will include strategies for hematologic optimization, iron management, and transfusion planning.

Faculty:
– Nathan Connell, MD, MPH (Moderator)
– Jennifer Dietrich, MD, MSc, FACOG
– Maureen Baldwin, MD, MPH
– Dawn Bauer, DNP, FNP-BC

Lunch Break (Knowledge Center/Exhibit Hall)
Light Lunch Available on Mezzanine Level Foyer, 2^nd Floor

“Best of HTRS and FWGBD” Networking Luncheon
Room: The Square, 1^st Floor
Lunch Provided by HTRS
**RSVP Only – Pre-Registration Required**

Sponsored by Genentech

Plenary IV: Navigating Without a Map: Management of Clinically Complex Cases
Room: Georgian
Many women and girls present with significant bleeding symptoms despite inconclusive laboratory testing or an unclear genetic diagnosis. This session will explore practical approaches to evaluating and managing these challenging cases while highlighting advances in genomic diagnostics and phenotyping that may help manage hematologic risk, pain, and perioperative planning, and help clarify these disorders in the future.

Faculty:
– Barbara Konkle, MD (Moderator)
– Bleeding Disorders of Unknown Cause – Callie Berkowitz, MD
– Hypermobility Spectrum Disorders – Genevieve Moyer, MD
– Genomics, Phenotyping, and Emerging Diagnostics – Barbara Konkle, MD

Workshop E: Perimenopause and Menopausal Hormone Therapies
– Jan Shifren, MD and Lisa Baute, MD
– Room: Berkley

Workshop F: Menstrual Pain in Women with Sickle Cell Disease
– Nancy Sokkary, MD
– Room: Clarendon

Workshop G: Genetics: Decoding Lab Results
– Kristin Paulyson Nuñez, MS, CGC and Juliana Perez Botero, MD
– Room: Georgian

Workshop H: 10 Anticoagulant Updates: What You Need to Know
– Rachel Rosovsky, MD, MPH
– Room: Hancock

Please visit the Knowledge Center/Exhibit Hall (Mezzanine Level Foyer & Statler, 2^nd Floor) for refreshments and networking, while also collecting resources to build period packs for local adolescent clinics.

ry V: Iron Deficiency in Focus: From Missed Diagnosis to Modern Care Models
Room: Georgian
This session will focus on practical, evidence-based solutions to improve the recognition, diagnosis, and management of iron deficiency across diverse patient populations. Speakers will highlight strategies for earlier identification, standardized screening approaches, and effective treatment pathways that can be integrated into everyday clinical practice. Real-world examples and multidisciplinary approaches will demonstrate how clinicians can close gaps in care, reduce delays in diagnosis, and improve patient outcomes for those at increased risk.

Moderator: Jacqueline Powers, MD, MS
Topics/Faculty:
– Screening and treating iron deficiency without anemia: where is the need? – Jacqueline Powers, MD, MS
– How do you get the lab to change the threshold and subsequent benefits? – Peter Kouides, MD
– Expeditious, efficient treatment for iron deficiency – Virtual Iron Deficiency Clinic – Ming Lim, MBBCh, MS

Charting the Course for the Future: From Insight to Action
This session will bring together key themes, insights, and clinical takeaways from across the meeting. Our Conference Planners will explore emerging gaps, unanswered questions, and opportunities for innovation, as well as put into focus clear and actionable strategies that can be applied in practice immediately.

Conference Co-Chairs: Patricia Huguelet, MD and Rachel Rosovsky, MD, MPH
FWGBD Board President: Sarah H. O’Brien, MD, MSc

Dinner Satellite Symposium – Industry Sponsor: Kedrion
A Clinical Approach to HFXD and PLGD-1: Recognition, Testing, and Treatment
Faculty: Michael Tarantino, MD and Charles Nakar, MD
The Square, 1^st Floor

This session is NOT accredited for continuing education credit

Breakfast Satellite Symposium – Industry Sponsor: J&J
A Treatment Option for Your Patients with Warm Autoimmune Hemolytic Anemia (wAIHA)
Faculty: Sandhya Panch, MD, MPH
Room: Arlington, 2^nd Floor

This session is NOT accredited for continuing education credit

Continental Breakfast
Room: Georgian

Beyond Rh: The Case for Anti-HPA-1a Screening
Room: Georgian
Faculty will explore the immunologic mechanisms and risk stratification of anti-HPA-1a alloimmunization, current and emerging diagnostic strategies, and evidence-based approaches to antenatal and perinatal management. The session will also examine the feasibility and implications of implementing screening programs, drawing comparisons to established models in red cell alloimmunization.

Faculty:
– Jerome “Jeff” Federspiel, MD, PhD (Moderator)
– Kenneth J. Moise, Jr., MD
– James Bussel, MD

Hereditary Hemorrhagic Telangiectasia: The Most Morbid Inherited Bleeding Disorder of Women
Room: Georgian
Hereditary hemorrhagic telangiectasia (HHT) affects women in ways that extend beyond recurrent epistaxis, with important implications for reproductive health, pregnancy, and quality of life. This session will examine the unique clinical considerations of caring for women with HHT, review emerging evidence, and provide practical insights to support optimal management across the lifespan.

Faculty:
– Hanny Al-Samkari, MD
– Naina Chipalkatti, MD