Guidelines, Screening Tools & Recommendations - Foundation for Women & Girls with Blood Disorders

Abdul-Kadir R, McLintock C, Ducloy A-S et al., Evaluation and management of postpartum hemorrhage: consensus from an international expert panel. Transfusion. 2014 Jul; 54(7):1756-68. doi: 10.1111/trf.12550. Click here for more information.

American College of Obstetricians and Gynecologists Practice Bulletin No. 196 Summary: Thromboembolism in Pregnancy. Obstet Gynecol. July 2018; Volume 132(1):243-248. doi: 10.1097/AOG.0000000000002707 Click here for more information.

American College of Obstetricians and Gynecologists Practice Bulletin No. 197: Inherited Thrombophilias in Pregnancy. Obstet Gynecol. July 2018; Volume 132(1):e18-e34. doi: 10.1097/AOG.0000000000002703 Click here for more information

American College of Obstetricians and Gynecologists Practice Bulletin No. 181: Prevention of Rh D Alloimmunization. Obstet Gynecol. 2017 Aug;130(2):e57-e70. doi: 10.1097/AOG.0000000000002232. PMID: 28742673. Click here for more information

American College of Obstetricians and Gynecologists, Committee on Practice Bulletins-Obstetrics. Practice Bulletin No. 183: Postpartum Hemorrhage. Obstet Gynecol. 2017 Oct; 130(4):e168-e186. doi: 10.1097/AOG.0000000000002351. PMID: 28937571. Click here for more information

American College of Obstetricians and Gynecologists Committee on Adolescent Health Care and Committee on Gynecologic Practice. Committee Opinion on von Willebrand Disease in Women. Click here for more information

American College of Obstetricians and Gynecologists Practice Bulletin No. 192: Management of Alloimmunization During Pregnancy. Obstet Gynecol. 2018 Mar; 131(3):e82-e90. doi: 10.1097/AOG.0000000000002528. PMID: 29470342. Click here for more information

American Academy of Pediatrics, Committee on Adolescence, American College of Obstetricians and Gynecologists and Committee on Adolescent Health Care. Menstruation in girls and adolescents: using the menstrual cycle as a vital sign. Click here for more information

Anticoagulation Forum 2016. Management of Venous Thromboembolism: Clinical Guidance from the Anticoagulation Forum. Click here for more information

American Society of Hematology 2019 Guidelines for Immune Thrombocytopenia. Blood Adv 2019; 3(23):3829–3866. Click here for more information

ASH ISTH NHF WFH 2021 guidelines on the diagnosis of von Willebrand disease. Blood Adv 2021; 5(1):280–300. Click here for more information.

Bates SM, Middeldorp S, Rodger M, James AH, Greer I Guidance for the treatment and prevention of obstetric-associated venous thromboembolism. J Thromb Thrombolysis. 2016; 41(1):92-128. doi:10.1007/s11239-015-1309-0. Click here for more information.

Bolton-Maggs HB, Chalmers EA, Collins PW, et al., A review of inherited platelet disorders with guidelines for their management on behalf of the UKHCDO. Brit J Haematol. 2006; 135:603-633. Click here for more information

CDC eight-question Screening Tool. [online] A tool to be used to help identify women who have unexplained menorrhagia who would most likely benefit from testing for a bleeding disorder. Click here for more information

Update to the CDC's U.S. Medical Eligibility Criteria for Contraceptive Use, 2016. (Curtis KM, Tepper NK, Jatlaoui TC, et al. U.S. Medical Eligibility Criteria for Contraceptive Use, 2016. MMWR Recomm Rep. 2016; 65(No. RR-3):1–104. DOI: http://dx.doi.org/10.15585/mmwr.rr6503a1). Click here for more information

Management of Inherited Bleeding Disorders in Pregnancy. Pavord S, Rayment R, Madan B, Cumming T, Lester W, Chalmers E, Myers B, Maybury H, Tower C, Kadir R on behalf of the Royal College of Obstetricians and Gynaecologists. Management of Inherited Bleeding Disorders in Pregnancy. Green-top Guideline No. 71. BJOG. 2017; 124:e193–e263. Click here for more information

MASAC Documents Dedicated to Females Affected by Bleeding Disorders, Pregnancy, and von Willebrand Disease. Expert Panel report: 2021. [online] Click here for more information

National Heart, Lung, and Blood Institute, 2014. Evidence-Based Management of Sickle Cell Disease: Expert Panel Report, 2014. [online]
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Provan D, et al. “Updated international consensus report on the investigation and management of primary immune thrombocytopenia.” Blood Advances. 2019; vol. 3(22): 3780-3817. Click here for more information

The following three recommendations pertain to the treatment and management of women and girls with bleeding disorders:

MASAC Recommendation #192: Guidelines for Perinatal Management of Women with Bleeding Disorders and Carriers of Hemophilia A and B [online]
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MASAC Recommendation #196: Recommendations Regarding the Treatment of von Willebrand Disease [online]
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MASAC Recommendation #197: Recommendations Regarding Girls and Women with Inherited Bleeding Disorders [online]
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This resource is published by the World Federation of Hemophilia (WFH) and has been linked here with permission.

World Federation of Hemophilia: Frequently Asked Questions about Women & Girls with Bleeding Disorders