The National Hemophilia Foundation (NHF)  is seeking comments on draft clinical practice guidelines on VWD Diagnosis & Management. The goal of this joint effort is to create and maintain state-of-the-art guidelines to improve diagnosis and management of VWD, and improving care and health outcomes important to patients and their caregivers. We are asking people with von Willebrand disease and their family members, caregivers, and healthcare providers to participate in this important endeavor.

 The International VWD Guidelines are a collaborative project by the World Federation of Hemophilia (WFH), the American Society of Hematology (ASH), the International Society on Thrombosis and Haemostasis (ISTH), and the National Hemophilia Foundation (NHF).  The public comment period provides an opportunity to comment on the recommendations of both the VWD Diagnosis and the VWD Management Panels.

The public comment period will be open through Thursday, May 15, 2020. The comments will be collected through an online survey where stakeholders from the community can choose to respond to the questions/recommendations. The comments can be made on all the recommendations or only on some of them.  Responses will be summarized and reported together. To view the draft guidelines and complete the survey please click on the link below:

https://tinyurl.com/uf8htqy

This is an important opportunity to share your thoughts and have your voice heard regarding the International VWD Guidelines, which will shape VWD management and care in the future. How you contribute does make a difference!  Please, encourage people you know to provide comments, Persons with VWD, caretakers for people living with VWD, hematologists, health care professionals, and anyone from the bleeding disorder community are especially encouraged to participate.   Please share this invite widely through your networks, but note: the public comment period will only be open through Thursday, May 15, 2020.