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The emotional experience of mothers of children with haemophilia: maternal guilt, effective coping strategies and resilience within the haemophilia community

| Sheridan N, Thompson B, Lichten L, Coleman K, Sidonio R Jr.
Acquired Hemophilia

Global assays in hemophilia

| Chitlur M, Young G.
Acquired Hemophilia

Discussing investigational AAV gene therapy with hemophilia patients: A guide

| Sidonio RF Jr, Pipe SW, Callaghan MU, Valentino LA, Monahan PE, Croteau SE.
Acquired Hemophilia

Women and girls with haemophilia receiving care at specialized haemophilia treatment centres in the United States

| Miller CH, Soucie JM, Byams VR, Payne AB, Sidonio RF Jr, Buckner TW, Bean CJ.
Acquired Hemophilia

A new hemophilia carrier nomenclature to define hemophilia in women and girls: Communication from the SSC of the ISTH

| van Galen KPM, d'Oiron R, James P, Abdul-Kadir R, Kouides PA, Kulkarni R, Mahlangu JN, Othman M, Peyvandi F, Rotellini D, Winikoff R, Sidonio RF.
Acquired Hemophilia

Enhancing therapeutic efficacy of in vivo platelet-targeted gene therapy in hemophilia A mice

| Wang X, Fu RY, Li C, Chen CY, Firrman J, Konkle BA, Zhang J, Li L, Xiao W, Poncz M, Miao CH
Acquired Hemophilia

Core data set on safety, efficacy, and durability of hemophilia gene therapy for a global registry: Communication from the SSC of the ISTH

| Konkle B, Pierce G, Coffin D, Naccache M, Clark RC, George L, Iorio A, O'Mahony B, Pipe S, Skinner M, Watson C, Peyvandi F, Mahlangu J
Acquired Hemophilia

Patient-relevant health outcomes for hemophilia care: Development of an international standard outcomes set

| van Balen EC, O'Mahony B, Cnossen MH, Dolan G, Blanchette VS, Fischer K, Gue D, O'Hara J, Iorio A, Jackson S, Konkle BA, Nugent DJ, Coffin D, Skinner MW, Smit C, Srivastava A, van Eenennaam F, van der Bom JG, Gouw SC.
Acquired Hemophilia

Plasma factor IX: The tip of the iceberg?

| Sidonio RF Jr, Batsuli G.
Acquired Hemophilia

Women and girls with haemophilia and bleeding tendencies: Outcomes related to menstruation, pregnancy, surgery and other bleeding episodes from a retrospective chart review

| Chaudhury A, Sidonio R Jr, Jain N, Tsao E, Tymoszczuk J, Oviedo Ovando M, Kulkarni R.
Acquired Hemophilia Bleeding Disorders

Characterizing Female Patients with Haemophilia A: Administrative Claims Analysis and Medical Chart Review.

| Farej R, Batt K, Afonja O, Martin C, Aubert R, Carlyle M, White J, Sidonio RF, Jr.
Acquired Hemophilia

The Impact of Extended Half-Life Factor Concentrates on Prophylaxis for Severe Hemophilia in The United States

| Malec LM, Cheng D, Witmer CM, Jaffray J, Kouides PA, Haley KM, Sidonio RF. Jr, Johnson K, Recht M, White G, Croteau SE, Ragni MV.
Acquired Hemophilia

“It was a lot tougher than I thought It would be”. A Qualitative Study on the Changing Nature of Being a Hemophilia Carrier

| von der Lippe C, Frich JC, Harris A, Solbrække KN
Acquired Hemophilia Bleeding Disorders

The Spectrum of Bleeding in Women and Girls with Haemophilia B

| Staber J, Croteau SE, Davis J, Grabowski EF, Kouides P, Sidonio Jr. RF
Acquired Hemophilia Bleeding Disorders

Management of inherited bleeding disorders pregnancy (Guidelines)

| Pavord S, Rayment R, Madan B, Cumming T, Lester W, Chalmers E, Myers B, Maybury H, Tower C, Kadir R, on behalf of the Royal College of Obstetricians and Gynaecologists
Acquired Hemophilia Bleeding Disorders Clotting & Clotting Disorders Guidelines

Complications of hemophilia in babies (first two years of life): a report from the Centers for Disease Control and Prevention Universal Data Collection System

| Kulkarni R, Presley RJ, Lusher JM, Shapiro AD, Gill JC, Manco-Johnson M, Koerper MA, Abshire TC, DiMichele D, Hoots WK, Mathew P, Nugent DJ, Geraghty S, Evat BL, Soucie JM
Acquired Hemophilia Bleeding Disorders

Haemophilia A carriers demonstrate pathological and radiological evidence of structural joint changes.

| Gilbert L, Rollins L, Hilmes M, Luo Y, Gailani D, Debaun MR and Sidonio RF.
Acquired Hemophilia Bleeding Disorders Factor VIII Deficiency

A cross-sectional study of bleeding phenotype in haemophilia A carriers. Br J Haematol. 2015 Jul;170(2):223-8.

| Paroskie A, Gailani D, DeBaun MR, Sidonio, Jr. RF.
Acquired Hemophilia Bleeding Disorders Factor VIII Deficiency

Management of bleeding in acquired hemophilia A: results from the European Acquired Haemophilia (EACH2) Registry. Blood. 2012 Jul 5;120(1):39-46

| Baudo F, et al.
Acquired Hemophilia

Immunosuppression for acquired hemophilia A: results from the European Acquired Haemophilia Registry (EACH2). Blood 2012;120(1):47-55. blood-2012-02-409185

| Collins P, Baudo F, Knoebl P, et al.
Acquired Hemophilia

Pregnancy-associated acquired haemophilia A: results from the European Acquired Haemophilia (EACH2) registry. BJOG 2012 Nov; 119(12):1129-37.

| Tengborn L, et al.
Acquired Hemophilia

Both hemophilia health care providers and hemophilia a carriers report that carriers have excessive bleeding.

| Paroskie A, Oso O, Almassi B, DeBaun MR, Sidonio RF.
Acquired Hemophilia Bleeding Disorders