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Enhancing therapeutic efficacy of in vivo platelet-targeted gene therapy in hemophilia A mice

| Wang X, Fu RY, Li C, Chen CY, Firrman J, Konkle BA, Zhang J, Li L, Xiao W, Poncz M, Miao CH
Acquired Hemophilia

Core data set on safety, efficacy, and durability of hemophilia gene therapy for a global registry: Communication from the SSC of the ISTH

| Konkle B, Pierce G, Coffin D, Naccache M, Clark RC, George L, Iorio A, O'Mahony B, Pipe S, Skinner M, Watson C, Peyvandi F, Mahlangu J
Acquired Hemophilia

Patient-relevant health outcomes for hemophilia care: Development of an international standard outcomes set

| van Balen EC, O'Mahony B, Cnossen MH, Dolan G, Blanchette VS, Fischer K, Gue D, O'Hara J, Iorio A, Jackson S, Konkle BA, Nugent DJ, Coffin D, Skinner MW, Smit C, Srivastava A, van Eenennaam F, van der Bom JG, Gouw SC.
Acquired Hemophilia

The spectrum and severity of bleeding in adolescents with low von Willebrand factor–associated heavy menstrual bleeding

| Srivaths L, Minard CG, O'Brien SH, Wheeler AP, Mullins E, Sharma M, Sidonio R, Jain S, Zia A, Ragni MV, Kulkarni R, Dietrich JE, Kouides PA.
von Willebrand Disease

von Willebrand Disease: Proposing definitions for future research

| Connell NT, James PD, Brignardello-Petersen R, Abdul-Kadir R, Ameer B, Arapshian A, Couper S, Di Paola J, Eikenboom J, Giraud N, Grow JM, Haberichter S, Jacobs-Pratt V, Konkle BA, Kouides P, Laffan M, Lavin M, Leebeek FWG, McLintock C, McRae S, Montgomery R, O'Brien SH, O'Donnell JS, Ozelo MC, Scappe N, Sidonio R, Tosetto A, Weyand AC, Kalot MA, Husainat N, Mustafa RA, Flood VH.
von Willebrand Disease

Plasma factor IX: The tip of the iceberg?

| Sidonio RF Jr, Batsuli G.
Acquired Hemophilia

Elevated von Willebrand factor levels during heavy menstrual bleeding episodes limit the diagnostic utility for von Willebrand disease.

| Brown MC, White MH, Friedberg R, Woods K, Childress K, Kulkarni M, Sidonio RF Jr.
von Willebrand Disease

Abnormal Uterine Bleeding in the Adolescent

| Hernandez A, Dietrich JE.

“Part of the Ritual”: Exploring Patient and Physician Decision Making Regarding Anticoagulation Use in Obstetric Antiphospholipid Syndrome

| Skeith, L, Rodger, MA, Bates, SM, Gonsalves, C, Taylor, TS

The most important takeaways from the new ASH guidelines for the management of venous thromboembolism

| Streiff MB
Bleeding Disorders Guidelines Other Blood Disorders

Building access to care in adult sickle cell disease: defining models of care, essential components, and economic aspects

| Kanter, J., Smith, W. R., Desai, P. C., Treadwell, M., Andemariam, B., Little, J., Nugent, D., Claster, S., Manwani, D. G., Baker, J., Strouse, J. J., Osunkwo, I., Stewart, R. W., King, A., Shook, L. M., Roberts, J. D., & Lanzkron, S.

Updated Guidelines for Treatment of von Willebrand Disease

| James, P.D., Connell, N.T., Ameer, B., Di Paola, J., Eikenbook, J., Giraud, N., et al.
von Willebrand Disease

Laboratory misdiagnosis of von Willebrand disease in post-menarchal females: A multi-center study

| Jaffray J, Staber JM, Malvar J, Sidonio R, Haley KM, Stillings A, Weyand A, Hege K, Jain S, Gupta S, Agnew C, Wheeler A, Pawar A, Sharma M, Chitlur M, OʼBrien SH, Kouides P.
von Willebrand Disease

Women and girls with haemophilia and bleeding tendencies: Outcomes related to menstruation, pregnancy, surgery and other bleeding episodes from a retrospective chart review

| Chaudhury A, Sidonio R Jr, Jain N, Tsao E, Tymoszczuk J, Oviedo Ovando M, Kulkarni R.
Acquired Hemophilia Bleeding Disorders

ACOG Practice Bulletin No. 197: Inherited Thrombophilias in Pregnancy

| American College of Obstetricians and Gynecologists' Committee on Practice Bulletins–Obstetrics
Clotting & Clotting Disorders Other Blood Disorders

ACOG Practice Bulletin No. 192: Management of Alloimmunization During Pregnancy

| American College of Obstetricians and Gynecologists' Committee on Practice Bulletins—Obstetrics
Bleeding Disorders Guidelines

Abnormal Uterine Bleeding in Young Women with Blood Disorders

| Dickerson KE, Menon NM, Zia A.
Bleeding Disorders Other Blood Disorders

Platelet Counts During Pregnancy

| Reese JA, Peck JD, Deschamps DR, McIntosh JJ, Knudtson EJ, Terrell DR, Vesely SK, George JN
Other Blood Disorders Platelets

Pregnancy and delivery in women with von Willebrand disease.

| Castaman G, James PD.
Factor VIII Deficiency von Willebrand Disease

Inherited Bleeding Disorders in the Obstetric Patient

| Bannow BS, Konkle BA.
Bleeding Disorders Factor IX Deficiency Factor VIII Deficiency Other Blood Disorders von Willebrand Disease

Thrombocytopenia in Pregnancy: Mechanisms and Management

| Fogerty AE
Platelets

The current state of sickle cell trait: implications for reproductive and genetic counseling

| Pecker LH, Naik RP.
Sickle Cell Disease

Sickle Cell Disease

| Ware RE, de Montalembert M, Tshilolo L, Abboud MR.
Sickle Cell Disease

Outcomes of Immune Thrombotic Thrombocytopenic Purpura (iTTP) With Upfront Cyclophosphamide vs. Rituximab

| Abou-Ismail MY, Arafah Y, Fu P, Cao S, Schmaier AH, Nayak L.
Bleeding Disorders Immune Thrombocytopenia (ITP)

Post-Transfusion Purpura: Current Perspectives

| Hawkins J, Aster RH, Curtis BR.
Bleeding Disorders Immune Thrombocytopenia (ITP)

Prothrombotic Risk Factors and Preventive Strategies in Adolescent Venous Thromboembolism

| Srivaths L, Dietrich JE
Clotting & Clotting Disorders

Risk Factors and Co-Morbidities in Adolescent Thromboembolism are Different than Those in Younger Children

| Ishola, T., Kirk, S.E., Guffey, D., Voigt, K., Shah, M.D., Srivaths, L.
Clotting & Clotting Disorders

Assessment of an Electronic Intervention in Young Women with Heavy Menstrual Bleeding

| 3. Dietrich JE, Yee D, Santos XM, Bercaw-Pratt JL, Kurkowski J, Soni H, Lee-Kim YJ, Shah MD, Mahoney D, Srivaths LV
Bleeding Disorders

Gynecologic Bleeding Complications in Postmenarchal Female Adolescents Receiving Antithrombotic Medications

| Soni H, Kurkowski J, Guffey D, Dietrich JE, Srivaths L.
Bleeding Disorders Clotting & Clotting Disorders

2020 Report Card on Sickle Cell Disease

Sickle Cell Disease

The ITP Syndrome: Pathogenic and Clinical Diversity

| Cines, D.B., Bussel, J.B., Liebman, H.A. Luning Prak, E.T.
Immune Thrombocytopenia (ITP) Platelets

Thrombopoietin Receptor Agonists: Ten Years Later

| Ghanima, W., Cooper, N., Rodeghiero, F., Godeau, B., Bussel, J.B.
Immune Thrombocytopenia (ITP) Platelets

Updated International Consensus Report on the Investigation and Management of Primary Immune Thrombocytopenia

| Provan, D., Arnold, D.., Bussel, J.B., Chong, B.H., Cooper, N., Gernsheimer, T., Ghanima, W., Goudeau, B., González-López, T.J., Grainger, J. Hou, M., Kruse, C., McDonald, V. Michel, M., Newland, A.C., Pavord, S., Rodeghiero, F.
Immune Thrombocytopenia (ITP) Platelets

Standardization of Bleeding Assessment in Immune Thrombocytopenia: Report From the International Working Group

| Rodeghiero, F., Michel, M., Gernsheimer, T., Ruggeri, M., Blanchette, V., Bussel, J.B., Cines, D.B., Cooper, N., Goudeau, B., Greinacher, A., Imbach, P., Khellaf, M., Klaassen, R.J., Kühne, T., Liebman, H., Mazzucconi, M.G., Newland, A., Pabinger, I., Tosetto, A., Stasi, R.
Immune Thrombocytopenia (ITP) Platelets

Treatment of Primary and Secondary Immune Thrombocytopenia

| Kado, R.; McCune, W.J.
Immune Thrombocytopenia (ITP) Platelets

Why Do Patients With Immune Thrombocytopenia (ITP) Experience Lower Bleeding Events Despite Thrombocytopenia?

| Boulware, R. Refaai, M.A.
Immune Thrombocytopenia (ITP) Platelets

Treatments for Primary Immune Thrombocytopenia: A Review

| Trotter, P., Hill, Q.

Emerging Concepts in Immune Thrombocytopenia

| Swinkels, M., Rijkers, M., Voorberg, J., Vidarsson, G., Leebeek, F.W.G., Gerard Jansen, A.J.
Immune Thrombocytopenia (ITP) Platelets

Immune Thrombocytopenia: Improving Quality of Life and Patient Outcomes

| Trotter, P., Hill, Q.
Immune Thrombocytopenia (ITP) Platelets

Identifying and Treating Refractory ITP: Difficulty in Diagnosis and Role of Combination Treatment

| Miltiadous, O., Hou, M., Bussel, J.
Immune Thrombocytopenia (ITP) Platelets

Development of Disease-Specific Health-Related Quality-Of-Life Instruments for Children With Immune Thrombocytopenic Purpura and Their Parents

| Barnard, D., Woloski, M., Feeny, D., McCusker, P., Wu, J. David, M., Bussel, J., Lusher, J., Wakefield, C., Henriques, S., Blanchette, V., Canadian Children's Platelet Study Group
Immune Thrombocytopenia (ITP) Platelets

Pediatric ITP: Is It Different From Adult ITP?

| Despotovic, J.M., Grimes, A.B.

Immune Thrombocytopenia

| Kistangari, G., McCrae, K.R.
Immune Thrombocytopenia (ITP) Platelets

Clinical Characteristics of Immune Thrombocytopenia Associated With Autoimmune Disease: A Retrospective Study

| Liu, Y., Chen, S., Sun, Y., Lin, Q., Liao, X., Zhang, J., Luo, J., Quain, H., Duan, L., Shi, G.
Immune Thrombocytopenia (ITP)

Platelet Disorders

| Haley, KM.
Platelets

Characterizing Female Patients with Haemophilia A: Administrative Claims Analysis and Medical Chart Review.

| Farej R, Batt K, Afonja O, Martin C, Aubert R, Carlyle M, White J, Sidonio RF, Jr.
Acquired Hemophilia

The Impact of Extended Half-Life Factor Concentrates on Prophylaxis for Severe Hemophilia in The United States

| Malec LM, Cheng D, Witmer CM, Jaffray J, Kouides PA, Haley KM, Sidonio RF. Jr, Johnson K, Recht M, White G, Croteau SE, Ragni MV.
Acquired Hemophilia

Fertility Challenges for Women with Sickle Cell Disease.

| Ghafuri DL, Stimpson SJ, Day ME, James A, DeBaun M, Sharma D.
Sickle Cell Disease

A Cross-Sectional Study of Women and Girls with Congenital Bleeding Disorders: The American Thrombosis and Hemostasis Network Cohort

| Haley, K.M., Sidonio, R.F. Jr., Abraham, S., Cheng, D., Recht, M.,, Kulkarni, R.
Bleeding Disorders WGBD Clinics (LAN)

Unscheduled Vaginal Bleeding with Progestin-Only Contraceptive Use

| Zigler, R.E., McNicholas, C.

Reproductive Issues in Sickle Cell Disease

| James, A.H.
Sickle Cell Disease

A Targeted Agent for Sickle Cell Disease - Changing the Protein but Not the Gene

| Thompson, A.
Sickle Cell Disease

Computer and Mobile Technology Interventions to Promote Medication Adherence and Disease Management in People with Thalassemia

Clotting & Clotting Disorders Other Blood Disorders

Risk Factors for Hospitalizations and Readmissions among Individuals with Sickle Cell Disease: Results of a U.S. Survey Study

| Cronin, R., Hankins, J.S., Byrd, J., Pernell, B.M., Kassim, A., Adams-Graves, P., Thompson, A., Kalinyak, K., DeBaun, M., Treadwell, M.
Sickle Cell Disease

ASH Clinical Practice Guidelines on Immune Thrombocytopenia (updated 2019)

| Neunert,C., Terrell, D.R., Arnold, D.M., Buchanan, G., Cines, D.B., Cooper, N., Cuker, A., Despotovic, J.M., George, J.N., Grace, R.F., Kühne, T., Kuter, D.J., Lim, W., McCrae, K.R., Pruitt, B., Shimanek, H., Vesely, S.K.
Immune Thrombocytopenia (ITP) Platelets

Risks Associated with Fertility Preservation for Women with Sickle Cell Anemia

| Pecker, L.H., Maher, J.Y., Law, J.Y., Beach, M.C., Lanzkron, S., Christianson, M.S.
Anemias Sickle Cell Disease

Diagnosis and Management of Heavy Menstrual Bleeding and Bleeding Disorders in Adolescents

| Borzutzky, C., Jaffray, J.
Bleeding Disorders

Patterns of von Willebrand Disease Screening in Girls and Adolescents With Heavy Menstrual Bleeding

| Jacobson, A.E., Vesely, S.K., Koch, T., Campbell, J., O’Brien, S.H.
Bleeding Disorders von Willebrand Disease

Case-based Discussion on the Implications of Exogenous Estrogens in Hemostasis and Thrombosis: the Obstetrician's View.

| James, A.H.
Bleeding Disorders Clotting & Clotting Disorders von Willebrand Disease

Gynecologic Management Of Pediatric And Adolescent Patients With Ehlers-Danlos Syndrome.

| Hernandez AMC, Dietrich JE.
Bleeding Disorders Other Blood Disorders

Treatment for Iron Deficiency Anemia Associated With Heavy Menstrual Bleeding

| Boccia, R., Friedman, A.J., Goodnough, L.T., James, A.H., Nelson, A.L., Ocean, A.M.

Medically Speaking: Heavy Menstrual Bleeding & Bleeding Disorders

| Dietrich, J.E., Srivaths, L.
Bleeding Disorders

Increasing Rate of Pulmonary Embolism Diagnosed in Hospitalized Children in the United States from 2001 to 2014.

| Carpenter SL, Richardson T, Hall M.
Clotting & Clotting Disorders

Hematopoietic Stem Cell Transplantation for Adult Sickle Cell Disease in the Era of Universal Donor Availability

| Aslam, H.M., Yousuf, S., Kassim, A. et al.
Sickle Cell Disease

Significant Gynecological Bleeding in Women with Low von Willebrand Factor Levels

| Lavin M, Aguila S, Dalton N, et al.
Bleeding Disorders von Willebrand Disease

Characterizing Adolescents with Heavy Menstrual Bleeding and Generalized Joint Hypermobility

| Kendel, N., Haamid, F., Christian-Rancy, M., O'Brien, S.H.
Bleeding Disorders Other Blood Disorders

Complications in Pregnant Women with Sickle Cell Disease

| Smith-Whitley, K
Sickle Cell Disease

Experience with Intrauterine Device Insertion in Never Sexually Active Adolescents: A Retrospective Cohort Study

| Kebodeaux CA, Schwartz BI
Bleeding Disorders

Women with Bleeding Disorders

| C Hermans and R Kulkarni
Bleeding Disorders

American College of Obstetrics & Gynecology Practice Bulletin No. 192: Management of Alloimmunization During Pregnancy

Guidelines

American College of Obstetrics & Gynecology Practice Bulletin No. 183: Postpartum Hemorrhage

Bleeding Disorders Guidelines

American College of Obstetrics & Gynecology Practice Bulletin No. 181: Prevention of Rh D Alloimmunization

Guidelines Other Blood Disorders

American College of Obstetrics & Gynecology Practice Bulletin No. 197: Inherited Thrombophilias in Pregnancy

Clotting & Clotting Disorders Guidelines

American College of Obstetrics & Gynecology Practice Bulletin No. 196 Summary: Thromboembolism in Pregnancy

Clotting & Clotting Disorders Guidelines

“It was a lot tougher than I thought It would be”. A Qualitative Study on the Changing Nature of Being a Hemophilia Carrier

| von der Lippe C, Frich JC, Harris A, Solbrække KN
Acquired Hemophilia Bleeding Disorders

ACOG Committee Opinion: Adolescents and Long-Acting Reversible Contraception: Implants and Intrauterine Devices

| American College of Obstetricians and Gynecologists
Bleeding Disorders Guidelines

The Spectrum of Bleeding in Women and Girls with Haemophilia B

| Staber J, Croteau SE, Davis J, Grabowski EF, Kouides P, Sidonio Jr. RF
Acquired Hemophilia Bleeding Disorders

Contraceptive Management for Women Who Are at High Risk of Thrombosis

| Gray B, Floyd S, James AH
Bleeding Disorders Clotting & Clotting Disorders

Managing Heavy Menstrual Bleeding in Women at Risk of Thrombosis

| Rivara A & James AH
Bleeding Disorders Clotting & Clotting Disorders

Patch Instead of Pill: A Safer Menopausal Estrogen?

| Cushman M
Clotting & Clotting Disorders

Venous Thromboembolism and Stroke in Pregnancy

| McLean K and Cushman M
Bleeding Disorders Clotting & Clotting Disorders

Pregnancy and Laboratory Studies - A Reference Table for Clinicians

| Abbassi-Ghanavati M, Greer LG, and Cunningham FG
Bleeding Disorders Clotting & Clotting Disorders Platelets

Management of inherited bleeding disorders pregnancy (Guidelines)

| Pavord S, Rayment R, Madan B, Cumming T, Lester W, Chalmers E, Myers B, Maybury H, Tower C, Kadir R, on behalf of the Royal College of Obstetricians and Gynaecologists
Acquired Hemophilia Bleeding Disorders Clotting & Clotting Disorders Guidelines

Complications of hemophilia in babies (first two years of life): a report from the Centers for Disease Control and Prevention Universal Data Collection System

| Kulkarni R, Presley RJ, Lusher JM, Shapiro AD, Gill JC, Manco-Johnson M, Koerper MA, Abshire TC, DiMichele D, Hoots WK, Mathew P, Nugent DJ, Geraghty S, Evat BL, Soucie JM
Acquired Hemophilia Bleeding Disorders

Differences in bleeding phenotype and provider interventions in postmenarchal adolescents when compared to adult women with bleeding disorders and heavy menstrual bleeding

| Srivaths LV, Zhang QC, Byams VR, Dietrich JE, James AH, Kouides PA, Kulkarni R, the Hemophilia Treatment Centers Network Investigators
Bleeding Disorders Platelets

Management of hereditary antithrombin deficiency in pregnancy

| James AH, Bates SM, Bauer KA, Branch W, Mann K, Paidas M, Silverman N, Konkle BA
Clotting & Clotting Disorders

Evaluation and management of postpartum hemorrhage: consensus from an international expert panel

| Abdul-Kadir R, McLintock C, Ducloy A-S et al.,
Bleeding Disorders

Guidance for the treatment and prevention of obstetric-associated venous thromboembolism

| Bates SM, Middeldorp S, Rodger M, James AH, Greer I.

Maternal extracellular vesicles and platelets promote preeclampsia via inflammasome activation in trophoblasts

| Kohli S, Ranjan S, Hoffmann J, et al.
Bleeding Disorders Platelets

Neonatal Hemostatic Disorders: Issues and Challenges

| Hanmod S, Jesudas R, Kulkarni R, and Chitlur M
Bleeding Disorders

Developing a multidisciplinary Young Women's Blood Disorders Program: a single-centre approach with guidance for other centers.

| Zia A, Lau M, Journeycake J, et al.
WGBD Clinics (LAN)

Progress toward meeting the needs of adolescent females with bleeding disorders.

| Konkle BA.
Bleeding Disorders

Prothrombotic Risk Factors and Preventive Strategies in Adolescent Venous Thromboembolism.

| Srivaths L, Dietrich JE.
Clotting & Clotting Disorders

Haemophilia A carriers demonstrate pathological and radiological evidence of structural joint changes.

| Gilbert L, Rollins L, Hilmes M, Luo Y, Gailani D, Debaun MR and Sidonio RF.
Acquired Hemophilia Bleeding Disorders Factor VIII Deficiency

A cross-sectional study of bleeding phenotype in haemophilia A carriers. Br J Haematol. 2015 Jul;170(2):223-8.

| Paroskie A, Gailani D, DeBaun MR, Sidonio, Jr. RF.
Acquired Hemophilia Bleeding Disorders Factor VIII Deficiency

Females with FVIII and FIX deficiency have reduced joint range of motion. American Journal of Hematology 2014 89(8):831-836.

| Sidonio RF, et al.
Bleeding Disorders Factor IX Deficiency Factor VIII Deficiency

Prevention and treatment of venous thromboembolism in pregnancy in patients with hereditary antithrombin deficiency. IJWH. 2013;5: 233-241.

| James A, et al.
Clotting & Clotting Disorders

Reproductive issues in sickle cell disease. Blood. 2014; 124(24):3538-3543.

| Smith-Whitley K.
Sickle Cell Disease

Recognizing and Identifying the Signs and Symptoms of Bleeding Disorders Among Women and Girls: How Mobile Health Clinics Can Help