Topic: Evidence-Based Guideline on Hemophilia Care: A Model for Rare Disease Guidelines

Presenter: Mark Skinner, JD; Menaka Pai, BSc, MSc, MD, FRCPC; and Steven Pipe, MD

When: February 16th, 2017, 2:00-3:00 PM, ET

In this webinar, presenters will describe the research that formed the basis for the NHF-McMaster Guideline on Care Models for Haemophilia Management, and how the guideline will be put into action, including

  • The main findings of the study;
  • How these findings were used to develop the guideline;
  • The clinical implications of the guideline; and
  • How this guideline will be used in the U.S. Hemophilia Treatment Center network to improve care for people with hemophilia. 

This public health webinar is brought to you by The Division of Blood Disorders of the National Center on Birth Defects and Development Disabilities. It is free and open to public health professionals, clinicians and researchers. To learn more and to register, please visit: