The Centers for Disease Control and Prevention (CDC) studied women already diagnosed with VWD and found that the average interval between a woman’s first seeking medical help for symptoms and receiving an accurate diagnosis is 16 years.

Kirtava A, Crudder S, Dilley A, Lally C, Evatt B. Trends in clinical management of women with von Willebrand disease: a survey of 75 women enrolled in haemophilia treatment centres in the United States. Haemophilia 2004 Mar; 10(2):158-61

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