Why A Clinic Devoted Specifically to Females with Bleeding and Other Blood Disorders?
The situation is concerning:
- von Willebrand disease (VWD) accounts for 80-85% of all bleeding disorders1
- 91% of women have never heard of VWD
- 16% - 37% of women with heavy menstrual periods have been found to have VWD
- 31% of women experience heavy periods
While providing effective treatment for bleeding and blood disorders is critical, it isn’t enough. Many women still suffer in silence, never getting the help or diagnosis they need. For most, this means sleepless nights from worrying about excessive bleeding, missing out on academic and social opportunities, and social isolation from their peers. And for some, this suffering could have tragic consequences.
There is a way, however, to ensure that women and girls get the proper diagnosis and treatment they need to manage their bleeding disorder or other blood disorder effectively. The Foundation for Women & Girls with Blood Disorders (FWGBD) is working with healthcare professionals at, or associated with, HTCs to establish Women and Girls Bleeding Disorder (WGBD) Clinics of Excellence.
What is a WGBD Clinic of Excellence?
Women and Girls Bleeding Disorder (WGBD) Clinics of Excellence are clinics that have programs and services focusing specifically on the identification, diagnosis, management and treatment of women and/or girls with bleeding and other blood disorders.