Welcome to the Foundation's Learning Action Networks (LANs)!

The Women and Girls Learning Action Networks (LANs) are the home for collaboration, education, and resources for clinics specifically devoted to the care of women and girls with bleeding and other blood disorders. 

How did the LAN begin? 

In 2013, the Foundation was contacted by Oregon Health and Science University’s (OHSU) Hemophilia/Thrombosis Treatment Center and asked to assist in creating a designated young women’s clinic. The Center staff had been seeing an increasing number of young women with heavy menstrual bleeding within their regular hemophilia/thrombosis clinic; now they wanted a designated clinic day for young women and reached out the Foundation to help. In conjunction with the Board, the Foundation identified the Learning Action Network (LAN) model we would use to assist OHSU’s Center staff in the establishment and implementation of a quality clinic, hence our Foundation launched the Women and Girls Bleeding Disorder (WGBD) LAN.  Since then, the WGBD LAN has grown from 8 members to 160 members from 56 institutions in the US, Canada and Netherlands. In 2018, the Foundation launched the Women and Girls Sickle Cell Disease (WGSCD) LAN.  

What do members say about the LAN? 

What is the WGBD LAN? 

The Women and Girls Bleeding Disorder Learning Action Network is an exchange of key information and best practices in the care of women and girls with bleeding and other blood disorders. WGBD LAN participants are representatives of Hemophilia Treatment Centers (HTCs) as well as other healthcare institutions wishing to improve their care for women and girls with bleeding disorders and wish to start a designated women or girls clinic, or who already have an established, designated clinic for females. All of the WGBD LAN participants further benefit from input and guidance by our FWGBD experts, including our Board and Medical Advisors.

What is the WGSCD LAN? 

The Women and Girls Sickle Cell Disease (WGSCD) Learning Action Network is an exchange of key information and best practices in the care of women and girls with sickle cell disease and sickle cell trait. WGSCD LAN participants are representatives of Hemophilia Treatment Centers (HTCs) as well as other healthcare institutions wishing to improve their care for women and girls with sickle cell disease and wish to start a designated program and/or clinic, or who already have an established program, for females. All of the WGSCD LAN participants further benefit from input and guidance by our FWGBD experts, including our Board and Medical Advisors.

How do the LANs operate? 

A Learning Action Network (LAN) is a network that brings together healthcare professionals around a specific agenda in order to harness the power of collaboration, spread practical implementation of best practices, and connect participants to national intuitive actives and resources. Typical LAN models include collaborative projects, online interactions, as well as peer-to-peer education to facilitate learning. 

What do the LANs offer? 

  • Clinic calls
  • On-site meetings
  • Articles
  • Tools/Checklists
  • Partnerships
  • News 
  • Educational Forums

How Can My Clinic Become a Member of the WGBD LAN or the WGSCD LAN? 

When a clinic (organization) becomes a member of one of the Foundation's LANs, it demonstrates the organization’s commitment to making sure that women and girls with bleeding and other blood disorders are properly diagnosed and optimally treated throughout their lives. Participation begins with an organization contacting FWGBD to discuss its current status, and discuss opportunities for potential enhancements.

Then, the organization and the respective LAN – through a series of virtual meetings and activities – work together to enhance the services offered by the organization for female patients with bleeding and other blood disorders, as well as identify the critical elements to be implemented by the organization to be sure that the needs of these females are adequately met.

To receive more information about the Foundation's LANs and how to become a member, please e-mail Kerry Funkhouser, Executive Director.