The Foundation for Women & Girls with Blood Disorders seeks to ensure that all women and girls with blood disorders are correctly diagnosed and optimally treated and managed at every life stage. We achieve this through: 

  • Educating key healthcare providers for each life stage, including hematologists, pediatricians, family practice, emergency medicine, ob/gyn, geriatricians, nurses, dentists, dental hygienists, social workers and genetic counselors
  • Translating/disseminating provider information and research

This past year alone, the period from December 2016 through December 9, 2017, marked a number of achievements. During this program year, the Foundation: 

  • Conducted Workshops and Presentations at 4 major medical or interdisciplinary meetings
  • Developed and webcast 5 live Webinars; all archived in the Education section of
  • Granted 3 research awards: one (1) in Promoting XXcellence in Women’s Health: Optimal Management of Women and Girls with Blood Disorders ($15,000) and two (2) in Promoting XXcellence in Women’s Health: Optimal Management of Women and Girls with Blood Disorders ($35,000/each) 
  • Convened the first FWGBD Colloquium on “Uterine Hemostasis: The Challenges of Obstetric and Gynecologic Bleeding in the Reproductive Years”
  • Continued to enhance our online WGBD Directory, launched in April 2016, to include 121 HTCs (approximately 140)
  • Published our first FWGBD state-of-the-science paper on the recognition and management of Antithrombin Deficiency During Pregnancy
  • Completed and are ready to submit to journal the second FWGBD state-of-the-science paper on Uterine Hemostasis
  • Expanded WGBD Learning Action Network (LAN)* membership to include 110 members who represent 46 institutions located in 25 states and 1 institution in Canada (*Highlight: 50% increase from 55 members last December)
  • Convened third FWGBD in-person meeting of 54 LAN members at Oregon Health & Science University for in vivo experience of a Clinic of Excellence for Young Women with Blood Disorders; for education and the exchange of best practices; to hone the model of a clinic or services of excellence for women and girls with blood disorders; and to advance collective LAN research agenda
  • Presented FWGBD work and strategies to NHF female patients at 2017 Annual Meeting and to HFA’s women members at their at their TEACH Immersions program and through a Webinar
  • Continued upgrading our Web site,, including a revision to the Library and Resource Section

Our webinars this year have educated over 300 healthcare professionals alone. And, our attendees come highly motivated to participate in our educational programs and look forward to our presentations, viewing them as a valuable and worthwhile educational experience.

If you have ever attended one of our webinars or education symposia, you already know the quality and expertise our educational sessions deliver. Don’t miss an opportunity to enhance your knowledge about women's blood disorders - join our mailing list today